Lupus | Lupus Disease | PatientsEngage

Lupus

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. Lupus affects about 5 in 10,000 people. Most often, lupus starts in people in their 20s and 30s. It occurs 10 times more often in women than in men.

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My Relationship with an Invisible Illness

September 03, 2018

Suzanne Sangi is a 22-year-old who was recently diagnosed with Lupus, a chronic illness, which damages many parts of the body, including the joints, kidneys and heart. Here she talks about the pain that you can’t always see, and healing that you can always be a part of.

If You Stop Focussing On The Pain, It Gets Easier

May 10, 2018

Gopa, 49 from Mumbai was diagnosed with Lupus Nephritis soon after her breast cancer treatment ended. She shares the complications that Lupus brought and the lifestyle changes that have helped her.

Please tell us a bit about your condition 

I have Lupus Nephritis (stage 5) and a blockage in the heart which is being treated with medicines.

Women More at Risk for Kidney Diseases than Men

March 07, 2018

On World Kidney Day, Dr Jayesh Lele, National Secretary, Indian Medical Association, helps us understand why women are more likely to have an increased risk of kidney diseases than men.

Rheumatic Diseases: Why Are Mornings so Difficult?

September 24, 2017

Dr. Sapan C. Pandya, MD DM Clinical Immunology & Rheumatology answers this and many other questions in this exhaustive talk with Kirtida Oza, Co-founder of Sjögren’s India. This online Webinar on “Rheumatic Diseases: Challenges and Hope” is aimed at enhancing awareness about lesser understood diseases.  

#Rheumatic Diseases Awareness Month

Extraordinary Stories of Yoga Complementing Healing and Management of Chronic Conditions

June 20, 2017

Does Yoga help people manage chronic conditions and the various symptoms? On International Yoga Day, we speak to a cross section of people who believe strongly that yoga has contributed greatly in their journey of recovery1. 

Mr Purushotaman - Parkinsons

Stem cell transplant is feasible for leukemia and more

June 28, 2016

Texan Chuck Dandridge became the first adult in the U.S. to receive a newly modified stem cell transplant that uses genetically engineered blood cells from a family member. This was announced by researchers at UT Southwestern Medical Center’s Harold C. Simmons Comprehensive Cancer Center where the procedure was performed.

PatientsEngage interviewed Dr. Madhuri Vusirikala, Director of UT Southwestern’s National Marrow Donor Program, part of the stem cell transplant program. 
 

Prevention of Lupus

September 28, 2015

There is no known way to prevent Lupus since there is no known cause as yet. You can help manage flare-ups though:

  • Avoid known triggers such as sunlight, stress, and lack of sleep
  • Manage your diet
  • Get adequate exercise

 

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