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My Son's Rare Disease Has Made Us Stronger Humans

Last Updated:

January 24,2018

Original Published:

February 28,2017

Rare Disease Day 2017

RS Anand has a teenage son with a rare disease Duchenne Muscular Dystrophy which restricts him to a wheelchair. He talks about the emotional and mental strength that they have needed to build on as family to accept and overcome the various challenges.

Please tell us a bit about your son's condition 

My son Karanveer has Duchenne Muscular Dystrophy (DMD).

Each Appearance Of An Oral Ulcer Gives Me A Panic Attack

Last Updated:

February 20,2018

Original Published:

February 19,2018

MHR, as she prefers to be referred to as, has been battling Behcet’s Syndrome, a rare auto-immune disease for the last 17 years. Having been through various stages of pain, depression and hopelessness, body image issues she has tried ayurveda and yoga, to get some relief. She is keen to spread awareness on auto-immune disorders and wishes that doctors not treat her as guinea pig.

First diagnosis

He Thinks Blood Tests, Medications and Restrictions Are A Way Of Life

Last Updated:

February 27,2018

Original Published:

February 26,2018

Deepa Kannan, who has an 8-year-old son suffering from a rare condition called Congenital Adrenal Hyperplasia (CAH), bares her heart and mind about all her family has been through in trying to cope with the disorder and also about how she is spearheading an awareness movement for affected parents in India.

Please tell us a bit about your son Omkar’s condition?

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